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Clinical and Cognitive Data Available

Data TypeDescriptionSourceData Available
VisitsMonths since baseline visit, start year, current status of participant, and year of death (if deceased)NIH, JHUAll
DiagnosisConsensus diagnosis, clinician judgment of symptoms (and symptom onset date)NIH, JHUAll
Demographics and Study StatusBirth year, sex, race, Hispanic origin, education, handedness, primary language, marital status, baseline visit year, death year (if deceased)NIH, JHUAll
Family History of Dementia – 1Family history of dementia (yes/no)NIHAll
Family History of Dementia – 2Detailed information about family members with a history of dementiaJHUNot yet available
Health HistoryHealth history (cardiovascular, lung, thyroid, cerebrovascular, neurologic, psychiatric), cigarette smoking, substance useNIH, JHUAll
MedicationsMedication useNIH, JHUAll
Vital Signs, Sensory Status and AnthropometryHeight, weight, BMI, blood pressure, vision, hearing, waist, hip and neck circumferenceNIH, JHUNot yet available
Neurologic EvaluationUPDRS, ocular motility, strength, reflexes, neuropathy, neurologic  summaryJHUNot yet available
Cognitive AssessmentNeuropsychological test scoresNIH, JHUAll
Neuropsychiatric SymptomsNPI-Q, GDS, HAM-DNIH, JHUAll
Functional EvaluationCDR rating, CDR-Sum of Boxes, FAQNIH, JHUAll
Physical functionChair stands, standing balance, 4 meter walk, grip strengthJHUAll
Leisure activitiesCHAMPS questionnaire, LAQ questionnaireJHUAll
ActigraphyActigraphy measures of physical activity and circadian rhythmJHUNot yet available
AudiometryHearing history, hearing health care utilization, audiometry resultsJHUNot yet available

<< Resources for Researchers